Kyndrisa™ (drisapersen) Patient for 4 years
San Diego, CA
Tanner loves superheroes, Star Wars, video games, and performing arts. He’s a budding actor, comedian, and architect.
Tanner also has a rare genetic condition called Duchenne muscular dystrophy, a progressive muscle-wasting disorder that affects up to 1 in 3,500 newborns, primarily boys.
Tanner was born 4 weeks early, weighing just 4 pounds. At 15 months, he couldn’t lift his head while lying down. Concerned, his pediatrician referred him to a specialist. What followed was a journey spanning many visits across multiple doctors. Finally, one doctor suspected a particular disorder when Tanner couldn’t pull himself up to stand on his own. Immediately, the doctor ordered a muscle biopsy. The diagnosis came back as Duchenne muscular dystrophy.
Despite the challenges, Tanner is not letting Duchenne slow him down. Last year he led his school in the ALS Ice Bucket Challenge, dedicating his effort to ALS and DMD. He loves to play, snow ski, and swim. He considers Dr. Who and Jack Black personal heroes. Some day he plans to be on the stage, entertaining the crowd with his humor and insight.