BioMarin Community Guidelines

Thank you for engaging with us on social media! Our goal is to provide useful and interesting content about our company, our science and the communities we serve while fostering open and respectful dialogue. While our content may include medical and health topics, please note these posts should not be considered medical advice.

While we welcome the opportunity to hear from you on our social media channels, there are some limitations to how we can interact with you online, as the healthcare industry is a regulated environment. For instance, industry regulations prevent us from discussing medical advice, investigational programs, diagnoses or treatments with individuals online.

Responsibility for Your Content:

You are responsible for the content that you post, leave as a comment or send as a direct message on our social channels. You should only post content that is original and that you have the right to post. BioMarin is not responsible for any content posted by other users and is not obligated to monitor the content. Using any information provided by other users is done at your own risk. We reserve the right to monitor, review, edit, remove and delete user content, as well as disable, refuse, restrict or terminate access to our social media channels.

We will remove any content that:

  1. Mentions products
  2. Infringes on the copyright, trademark, patent or other intellectual property right of any third party
  3. Is false, misleading, libelous, defamatory, obscene, abusive, hateful, or sexually explicit
  4. Violates a third party’s right to privacy or publicity
  5. Degrades others on the basis of gender, race, class, ethnicity, national origin, religion, sexual preference, disability or other classification
  6. Contains epithets or other offensive language, or material intended to intimidate or to incite violence
  7. Contains any commercial material or solicits any funds (charitable or commercial), perpetuates chain letters or pyramid schemes, promotes commercial entities or otherwise engages in commercial activity
  8. Violates any applicable local, state, national, or international law, or advocates illegal activity
  9. Violates social media platform rules
  10. Constitutes a personal attack on a BioMarin employee or representative, or is disparaging of anyone featured on our channels
  11. Appears to be spam or is unrelated to the topic at hand

Please also note that our ability to respond to messages in languages other than English may be limited.

BioMarin may link to or follow accounts from related groups and communities. Accounts that BioMarin follows, as well as those that follow BioMarin, are not an indication of BioMarin’s endorsement of these accounts, their opinions or the content they produce. BioMarin is not responsible for content that third parties transmit via social media.

These Guidelines are a subset of BioMarin’s overall Terms of Use.

Read more in our Terms of Use.

Medical Side Effects, Adverse Events or Issues:

Patient safety is a top priority at BioMarin and we take all information related to our medicines seriously. Our social media channels are not meant to resolve issues, complaints, suggestions or experiences with our products. These types of concerns are best handled by trained representatives. If you believe that you have experienced any medical side effects or reactions from any BioMarin treatment you should consult your physician, pharmacist or other healthcare professional immediately.

Please contact our Medical Affairs department by submitting a request on our website, emailing medinfo@bmrn.com or calling 1-800-983-4587 if you would like to communicate with someone directly about a medical condition, clinical study or BioMarin treatment. Please note BioMarin does not give medical advice, nor does it provide medical or diagnostic services.

Keep in mind that social media is a public forum, and that anyone may see or save your comments. We recommend not sharing any personal information or personal health information within comments or posts on our pages. If you decide to message BioMarin directly with details about side effects, BioMarin may contact you to find out more information.

Storing and Using Private Information:

We do not collect your social media handles/IDs, email or any other personal information except in certain limited situations. For example, if you report an adverse event or product issue to us, we need to record identifying information about you, such as your name, location, or health-related information. This information is required by law to be submitted to the BioMarin Patient Safety Department and/or regulatory authorities, and we are required to store this information for five years for auditing purposes.

Visit the BioMarin Data Privacy Center.