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Meet Miller.

After being diagnosed with achondroplasia as a baby, his family sought out the latest research. Miller is an active teenager who loves riding tractors, fishing and exploring the great outdoors.

Q: Tell us a little bit about you and your family.
I am 13 years old, and I live with mom, dad, and our golden retriever. My half brother is 25 years old and I’m an uncle now! I live in St. Louis and like to hang out in the country, ride tractors and rangers, fish, and I just started to deer hunt and got my first deer. I also like video games!

“I’m just like everyone else, just shorter stature!”

Q: What is the one thing you want others to know about living with achondroplasia?
I’m just like everyone else, just shorter stature!

Q: How do you like to stay involved in the achondroplasia or rare disease communities?
I enjoy being active in the Little People of America gatherings and Regionals, and hopefully Nationals again, to see my friends and meet more people.

Q: What makes you as Miller “rare”?
I like to describe myself as creative and an inventor.

Q: What is your favorite book and why?
I love the Diary of a Wimpy Kid series!

Q: What is one of your favorite BioMarin memories?
Doing a photo and video shoot with the people from BioMarin.

Q: What’s the best piece of advice you’ve ever been given?
Keep your common sense and know your surroundings.

Q: If you had to pick one song to be the theme song to your life what would it be and why?
My favorite song is “Boys Round Here” by Blake Shelton.

Q: Tell us one goal you look forward to working toward accomplishing in the next few years.
I look forward to working on improving my golfing game!

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