Innovative therapeutics

Funding and

RARE Scholars

Accepting Applications Now
Applications for the 2020 fall semester are now open and must be submitted on or before March 30. To submit an application to RARE Scholars and for full eligibility requirements, please visit

About the Scholarship
RARE Scholars, an annual scholarship for students living with rare disease, aims to empower patients with continued education by recognizing students who have demonstrated leadership and participation in school and community activities.

The RARE Scholars program will distribute up to $20,000 each year, awarding $5,000 for undergraduate four-year or graduate studies or $2,500 for two-year or vocational-technical studies. Applicants must be high school seniors, graduates or current postsecondary or graduate level students diagnosed with mucopolysaccharidoses (MPS), phenylketonuria (PKU) or Batten disease.

Treatment status (including past, present or future status) has no bearing on applicant eligibility and will not be considered as part of the application.

Applicants to RARE Scholars must:

  • Be persons who have been diagnosed by a physician as having any form of mucopolysaccharidoses (MPS) disease, phenylketonuria (PKU), or Batten disease, regardless of treatment status. Persons are not required to be using a BioMarin product. Applicants will be asked to provide a doctor’s statement with the diagnosis.
  • Be high school seniors, graduates, current postsecondary undergraduates, or graduate level students.
  • Plan to enroll in full- or part-time (minimum 6 credits per term) undergraduate or graduate study at an accredited two-year or four-year college, university, or vocational-technical school in the U.S. or U.S. Territories for the entire 2019-2020 academic year.
  • Be U.S. and ex-U.S. residents enrolled in U.S.-based schools, including U.S. territories. Schools may be nonprofit or for-profit.
    Have a minimum grade point average of 3.0 on a 4.0 scale (or the equivalent).

Employees and children of employees of BioMarin are ineligible to apply.



Lysosomal Storage Disorders (MPS I, MPS IVA, MPS VI, CLN2 disease) PKU



Patient/Physician Support Contact Information

BioMarin RareConnections
Tel: 866.906.6100
Fax: 888.863.3361

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