Living With Achondroplasia

From going to school to playing with friends, children with achondroplasia can lead healthy, active lives. At the same time, because of the way their bones grow, physical complications can occur and progress over time.1 But if you know what to expect, you can help your child focus on the most important thing of all—just being a kid.

What are the possible complications?

Family Planning Considerations

The opportunity to conceive and have children is no different for women with achondroplasia than for those of average height. But because of the smaller size of their pelvises, women with achondroplasia may be advised to deliver by caesarean section.3

It’s also important to remember that achondroplasia is a genetic condition. This means that it can be passed down to children. Speaking with a geneticist can help offer guidance on family planning.3


Day-to-day activities may be more challenging
and require extra help. Daily challenges can include:

• Getting around (mobility)
• Reaching things
• Bathing
• Turning a doorknob
• Driving
• Toileting

Growing up can be hard, both socially and emotionally. Kids with achondroplasia may have challenges with self-esteem, social pressure, and anxiety.

– Caregiver of a child with achondroplasia


  1. Ireland PJ et al. J Dev Behav Pediatr 2010;31(1):41-7.
  2. Collins WO, Choi SS. Arch Otolaryngol Head Neck Surg 2007;133(3):237-44.
  3. Pauli RM. Orphanet J Rare Dis 2019;14:1.
  4. Afsharpaiman S et al. Sleep Breath 2011;15(4):755-61.
  5. Ireland PJ et al. Appl Clin Genet. 2014;7:117-125.
  6. Thompson S et al. Disabil Rehabil 2008:30(1):1-12.
  7. Fredwall SO et al. Orphanet J Rare Dis 2020. 25;15(1):123.

Know about the specialists who can help manage achondroplasia.