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The Application Period for the 2021-2022 Academic Year Is Now Closed

RARE Scholars is an annual scholarship for students living with rare disease that aims to empower patients with continued education by recognizing students who have demonstrated leadership and participation in school and community activities.

Applications open each year on Rare Disease Day in late February. The program distributes up to $20,000 annually for use during the following fall semester, awarding $5,000 for undergraduate four-year or graduate studies or $2,500 for two-year or vocational-technical studies.

Applicants must be high school seniors, graduates or current postsecondary or graduate level students diagnosed with mucopolysaccharidoses (MPS), phenylketonuria (PKU) or Batten disease. Treatment status (including past, present or future status) has no bearing on applicant eligibility and will not be considered as part of the application.


Applicants to RARE Scholars must:

  • Be persons who have been diagnosed by a physician as having any form of mucopolysaccharidoses (MPS) disease, phenylketonuria (PKU), or Batten disease, regardless of treatment status. Persons are not required to be using a BioMarin product. Applicants will be asked to provide a doctor’s statement with the diagnosis.
  • Be high school seniors, graduates, current postsecondary undergraduates, or graduate level students.
  • Plan to enroll in full- or part-time (minimum 6 credits per term) undergraduate or graduate study at an accredited two-year or four-year college, university, or vocational-technical school in the U.S. or U.S. Territories for the entire 2021-2022 academic year.
  • Be U.S. and ex-U.S. residents enrolled in U.S.-based schools, including U.S. territories. Schools may be nonprofit or for-profit.
  • Have a minimum grade point average of 3.0 on a 4.0 scale (or the equivalent).

Employees and children of employees of BioMarin are ineligible to apply.

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